Posts

Happiest Birthday Dear Krishna

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 Dear Krishna  Happiest Birthday! I still remember the day when I met you in Mayapur, West Bengal in October 2016. It was an ordinary day until that special moment came into my life. It wasn't the first time we were meeting, but whenever I met you before, I saw only a statue, an imitation of the real you.  However, that night, after a hectic day of traveling by flight for a couple of hours and then in a car for another three hours, luck favored me, and it felt like you decided to reveal yourself to me.  When we met amidst the crowd of devotees, in the light of countless diyas, something in me changed forever. I was overwhelmed when I felt your presence, and tears filled my eyes. I couldn't believe that I was actually experiencing your presence. I always thought I didn't have what it takes to connect with you as deeply as I did that night. I could never imagine that someone like me, who prayed occasionally, could experience this joy. My faith in you was flickering, an...

I'm Grateful For My Disability - Part 2

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I am so glad I kept my Yahoo mail active. I usually use it as a backup to send those files/information that I want to delete from my phone and other email accounts. Few minutes ago, I was casually looking at my old emails flooding my inbox and I found an incredibly positive description of my disability.  I don't remember writing this at all. It is very similar to my recent blog post so I decided to call it part 2.  I hope it brings you as much joy as it brought me. July 25, 2020   I'm starting to realize that disability has never been the bad guy in my life. Somehow, it didn't bother me as child, but it won't let me be at peace as an adult. What's changed? Perhaps my expectations of myself  after I understood the real world. When I fail to meet my new expectations and those of others, I feel trapped in an unsolvable chaos. As a kid I  never felt like I'm troubling someone while they took care of me. Now, it bothers me a lot to ask people to do anything more than...

Sorry to disappoint you

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Hello folks, I think this apology has been long overdue. I'm sorry I couldn't be the ideal person with disability. I spoke fluently when I was expected to have difficulty speaking. I understood everything when I was expected to be disoriented and confused. I took up a job when I was expected to stay home and stare at the walls. I can't help but feel a sense of satisfaction in disappointing people though. When the cab driver assumes that I have to go a hospital and I take him to one of the Big Fours, I can't help but smile at his lack of awareness. Realising that I'm not an object of his pity makes me super happy. But I am sorry for the driver who's left wondering about my condition, work, and my salary. People often told me that I'll fail exams with or without scribes because of Cerebral Palsy. I disappointed them with a Gold Medal. Others told me that only freelancing jobs are suitable for me and I should stop looking for full-time roles but I let them down...

I'm Grateful For My Disability

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 International day for persons with disabilities just went by and I'm here to share an important thought. Last night, it occurred to me that I'm quick to complain about the limitation my disability brings with it. However, there are a number of positive things that would not be part of my life if not for my disability. I want to shift my focus to these gifts of disability. Informal Learning To start with, I didn't go to school until I was eight years old. In these years, I learnt rhymes, songs, and played like all kids but I didn't have to wake up early in the morning and sit in class like my peers. I learnt everything I needed to from my twin. I enjoyed every bit of the informal learning. Special Treatment  As a student, I could never imagine that people in the professional world would make exceptions for me. Some employers offered me  the choice to work in a shift that suits me while others gave me the work from home opportunity.  Now, isn't that special treatment...

A Change For Disability Awareness

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 Hi there, What's new with you this 3rd of December? I'm trying to be more than just a content writer as I create awareness around disabilities. Recently I've started creating and posting videos about living with Cerebral Palsy and dealing with a disability in general.  I've always been shy in front of an audience on a stage or in front of a camera. However, when I am alone, I talk in front of my camera while looking and sounding decent. When I decided to make my first video, I had asked my friend to put together a series of my pictures with my voice over. This seemed easier since I only had to record my voice and avoid speaking to the camera. By the next time, however, I realised that asking my friend for help is easy but it increases my dependence on people, defeating my purpose of being independent and encouraging others like me to do the same. So I put aside all my doubts, fears and insecurities, gathered all the courage I have, and recorded a message of inclusion...

Say no to infantilization of the differently abled

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 "Why does she need to wear a saree?" "Why don't you have Parikshit check your leave balance before you apply?" "Why don't you have your mum oversee that transaction while you make it?" "Let me ask your mum if I should feed you two chapatis or one." I'm used to these kinds of questions and statements being thrown at me all the time. I knew something was off, but it was not until last year that I realized it is called infantilization. What's infantilization? For those who are reading this word for the first time, infantilization is a form of ableism where differently-abled adults are treated as children. We are treated as something less than who we are. In doing this, the able people often make decisions for their disabled counterparts believing that they are incapable of deciding what's best for them. On the occasion of the International Day for Persons with Disabilities, I thought it would be nice to discuss this phenomenon w...

Do you know the disability etiquette?

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 This international day of persons with disabilities, i didn't have to work hard to think of a topic. I came across an article that spoke of the etiquette of interacting with someone who has a disability. The idea excited me so much because I didn't know a lot despite living with a disability all my life. The article took me through situations I was familiar with and suprised me with things I must expect when I meet people. I believe these tiny changes in behaviour can have a positive impact on a disabled person's self respect, self image and confidence. The first is an eye contact and direct address. A lot of times, I've observed how people make their assumptions obvious. I've had visitors who'd see me and ask my mother (in front of me) if i could talk. It comes across as rude even if you don't intend it. The least you can do is make eye contact, smile and say hello. If the individual is struggling to respond then you can turn to the attender/family member....